Hope, Perseverance, and Pursuing Passion

It’s that time of year when you ponder about your passions and see how to pursue them with laser beam focus. For me, I want to focus on my family and helping THEM pursue their particular passionate projects. Like my alliteration?

So, with that, let me tell you about my kiddo and where I see her developing.

First, on the outside, her strength! I love to see her starting to get stronger with the gym and lifting weights!

STRENGTH

Her trainer Emma says she is small but mighty. You think!?

Her drive is the same way when it comes to her imagination. The ideas that pop into her head and then get translated on paper are profound. Just this week, I gave her two prompts, and she immediately wrote two short stories. See below:

These were written in less than an hour:

Freedom in Feathers

Barnaby the parakeet had never known kindness. His owner, an elderly woman with a somber countenance and a voice that could curdle milk, was as cold as the drafty house they lived in. Each day, she’d snap at his chirps, her sharp retorts echoing off the peeling wallpaper. “Quiet, you wretched bird!” she’d snarl. Her words were like barbed wires, entangled with bitterness, leaving Barnaby trapped in his gilded prison.

One fateful morning, her hands—gnarled with age—fumbled while closing his cage. The door swung open, and Barnaby hesitated only for a heartbeat. With acute awareness of the fleeting moment, he launched himself into the sky. His wings sliced through the crisp air, each beat shedding the weight of years in captivity.

Hours later, Barnaby’s strength faltered, and he descended into a small yard, his feathers sprinkled with dust and exhaustion. A little girl, Lucy, was in the midst of an intramural game of soccer with her dog when she spotted him. Her face lit up, her bright eyes contrasting the old woman’s perpetual scowl.

“What’s this?” she whispered, kneeling beside him. Her voice was soft yet profound, carrying a warmth Barnaby had never felt.

He chirped weakly, unsure if he could trust her, but the kindness in her gaze made him stay.

“You look like you’ve been through so much,” Lucy said, her words thoughtful for someone so young. “Don’t worry. I’ll take care of you now. Ad infinitum, you’ll never have to feel alone again.”

She cupped him gently in her hands, careful not to frighten him. The simple touch, so delicate yet deliberate, untangled the fear that had wrapped itself around his heart.

That evening, as Lucy read aloud from her favorite book, Barnaby perched on her shoulder. Her laughter filled the room, a sweet clamor of joy that made him chirp in harmony.

In Lucy’s home, there was no harsh matriarch to rule over him with cruelty. Instead, there was only love, sprinkled out in every smile and gentle word. Barnaby, once a prisoner of misery, had found freedom—not just in flight, but in the boundless care of an 11-year-old girl with a heart as big as the sky.

AND…this one:

The Secret Power

Shaun and Luke were six-year-old twins who did everything together. They liked to play hide-and-seek, build forts out of couch cushions, and see who could climb the tree in our backyard the fastest. They also liked to boss me around. I’m their big brother, Matthew, and I’m eight, so I’m obviously the boss of them. But somehow, they never listen.

Anyway, the craziest thing happened to me last week. It all started when I was trying to read a comic book in my room. Shaun and Luke were being loud downstairs, yelling about who got the bigger cookie. I shut my door, squeezed my pillow over my head, and shouted, “Be quiet already!”

That’s when it happened.

Suddenly, everything went silent. Like, not even the birds outside were chirping. I sat up and looked around. My window was open, so I could see the trees swaying, but no sound came in. It was like the whole world hit the mute button.

I thought maybe I broke my ears or something. But then I said, “Hello?” and heard my voice echo perfectly. It wasn’t me. It was… them.

I ran downstairs, and Shaun and Luke were frozen mid-argument, mouths open, not saying a word.

“Guys?” I said, poking Shaun’s shoulder. He turned to me, blinking. Then he said, “What just happened? Why can’t I talk?”

Luke said something, but no sound came out.

“Okay, this is weird,” I said, and just like that—pop—everything went back to normal. The TV came back on, the birds outside started singing, and Luke yelled, “You stole my cookie!” like nothing had happened.

It didn’t take me long to figure it out. I had a superpower. I could make everything go quiet if I wanted to. But I couldn’t tell anyone—not even Shaun and Luke. I’d seen enough superhero movies to know that the government might show up and try to experiment on me or something.

The next day, I tested it out while we were eating breakfast. Shaun kept slurping his cereal super loud, and Luke wouldn’t stop tapping his spoon on the table. “Can you two please stop?” I said, and boom, silence again.

It was the best.

I learned how to control it a little better over the next few days. I could make it quiet in just one room or the whole house. I even stopped the school bell from ringing once (but that might’ve been a bad idea because Mrs. Jones got all confused and kept us in class late).

The best part, though, was using it to mess with Shaun and Luke. Like when they were watching their favorite cartoon, and I made the sound cut out right before the big fight scene.

“Matthewwww!” they’d whine, but I’d just grin and pretend I didn’t know what was going on.

Eventually, I figured out I could use my power for good. One time, the twins were having a meltdown in the car on the way to the park. Mom was trying to drive, but Shaun and Luke kept screaming about who got to hold the map.

“Quiet, please,” I whispered, and just like that, peace.

Mom didn’t know what happened, but she looked at me in the rearview mirror and said, “Thank you, Matthew.”

I just smiled.

So yeah, I’ve got a superpower. It’s cool, even if I can’t tell anyone. But honestly? Having quiet twins is the real superpower.

HOW TO HELP HER PURSUE HER PASSION

Next semester, I’m signing her up for a mentorship with a Creative Writing coach from Royal Fireworks Press (Mark Fillie). YES!! I can’t wait to help her along with this.

Finally, I see her HEART growing immensely for teaching and Special Needs. Here is a card from SBC Special Ministries. They love having her volunteer each week as well as the nursery. She gives her heart to the kids. SO MATURELY!

So, you see, strength, creativity and imagination (in her writing), and her heart for others. (and her birdies!) I love watching her grow in all areas as well besides these. More on those in another blog.

As for me? I see hope in trying a new medicine.

I may have to be on it for the rest of my life, but I am willing if it saves me. With EOE, there is no cure and it’s hard to know what causes it. I AM SO GRATEFUL that my insurance has covered it since it is about $6000/month otherwise. I pray for 2025 to see some healing and hope.

I miss my husband. I miss my family. I miss my friends. I miss my ministries. I miss so many things it’s too numerous to count. But, I have a new perspective on what is important. I am completely and totally grateful for all I have, and I will NEVER take anything for granted.

Oh, and finally, I must mention that my hubby has his passions for which he hopefully will begin to pursue. He has an invention that has been “in the closet” for eons, and I know he would love to focus on it. I see him being so creative and intentional with all his work (at Honeywell and the house). Therefore, I know this will be a success for him…or at least the journey will be a fun pursuit.

I love you family. I truly do.

Noel! Come and see what God has done!

to our home.

Doug was busy decorating the tree (our glorious tree), and Tatum plays. She STILL plays with all the fun accoutrements from our storage stash.

We have the music playing on the TV…all our favorite Christmas songs.

Tatum plays busily with the nativity set.

She set up the dining room table with all kinds of characters and used her IMAGINATION which is overflowing all the time.

This is our US part of the tree…it’s so memorable.

And an ODE to my youth.

After all the fun decorating we met for gratitude. Guess who joined us?

What a fun day. Decorating is probably more fun than celebrating! (much more than taking it all down..ha!

A healthy man wants many things but a sick man wants only one

Me. Yep. For a long time. We take our health for granted.

2024 a year of trying to figure all this out.

Regurgitation, Nausea, Wooziness began. Now, when I say “woozy” I don’t mean your general fatigue or tiredness. No, this is if someone took a sedation gun and shot me between the eyes. I’m not able to even think or keep my eyes open…it’s almost a “dizziness” that doesn’t subside with even lying down.

Before this, it was YEARS of gut issues from dysbiosis (IBS), SIBO, colitis, gastritis, and GERD. Only to go completely DOWNHILL in the year 2024.

Tatum left PVCP to be homeschooled; Doug sacrificed “US” as a couple; Our family cancelled many plans last minute; No vacations, eating out, quick trips; over $50K in bills from supplements to tests to Dr. appts to promises of better health. What a year. But was it? I DID get closer to JESUS. I DID minimize my activities. I DID find joy in the small things like staring out the window and watching birds.

When you’re sick, you’ll buy or fall for anything because all you want is ONE THING: GET BACK TO HEALTH..whatever that means. For me, it meant functioning through the day without feeling like I had to go to bed. (and it wasn’t from depression) I just truly couldn’t walk or eat.

Here are all the tests I had done:

  1. Feb 2024: Bravo Ph and endoscopy (Demister score: 15) Reflux diagnosed
  2. Feb 2024: Esophogram: small hiatal hernia with questionable findings for low-grade reflux esophagitis. 
  3. March Blood test showed HIGH MCV (anemia, high cortisol, Low fasting glucose)
  4. March: HIDA SCAN: Gall Bladder showed normal
  5. April: Precision Point food test: RED: Egg Albumin, almond, Orange Peach, English Walnut, Kidney Bean, Mustard, Navy Bean, Plum , Soybean,  String Bean, Tomato, Tuna
  6. May: Anemic (Ferritin and Vitamin C low)
  7. August: Blood test showed Eosinophils (ALLERGY): 1.7 (now I see what the rising level meant)
  8. Sept: Blood test showed Elevated WBC, MCV, Eosinophils. .9 (went down to .8 in late Sept)
  9. September: CT Scan showed constipation abdomen with contrast
  10. September: 3 day parasite gut test: dysbiosis but mostly normal
  11. October: Gastric Emptying: NORMAL (2 hours 100%)
  12. November: Esophogram: NORMAL
  13. November: CT Scan with contrast of chest…NORMAL
  14. November: Manometry: Both sphincters are NORMAL 
  15. November: Bravo PH 96 hour: Demister score: 10…NO REFLUX!!!!
  16. November: Endoscopy: 3 biopsies of the esophagus.: I had 15 on the left side of esophagus.

A biopsy showing 10 eosinophils per high power field (HPF) is generally considered normal and would not be diagnostic for esophagitis, particularly eosinophilic esophagitis (EoE), which requires a significantly higher count (typically 15 or more eosinophils per HPF) to confirm a diagnosis; therefore, a count of 10 eosinophils would not support a diagnosis of esophagitis. 

DIAGNOSIS: EOE: Eosinophil Esophagitis

Dr. Shaheen has prescribed budesonide oral for 12 weeks. (an oral steroid)

My main symptoms: Nausea and regurgitation AND a feeling of being drunk/hungover. I mean REALLY sedated/hungover, and I have cut out most everything. It is so frustrating to not know what is causing this. The joy of eating has gone out the window because I feel awful after I eat, and again, I don’t know what is “good” and “bad” for me.

Could it be a histamine release? I have so many more questions, and I feel AWFUL that I have become so self-absorbed. I truly take one minute at a time, and I try to find the joy in my day. If it wasn’t for my family, I probably would just be in bed, but I need to be a strong girl and show overcoming.

Jesus, I know you are WITH ME ALWAYS. I know you see all of this, and that you have a plan for me and my family. Maybe you could give me a break in 2025, and get me on the path to better health. I have a long list of what I miss, and the first thing is being “out” with my husband and CHURCH. I also miss family outings / experiences. Sorry for focusing on these things.

In the meantime, I have found solace in worship music videos. The comments on these videos are life-giving. Thank you for what you are doing in people’s lives. Please give us more insight into this as the year ends.

I love you, Father. I truly love you.

Building strength and resilience

I wish I could just hire a trainer for Tatum to build strength and resilience inside.

You see, yes, she is getting stronger in some ways. At the gym, she’s lifting weights now with Emma, her trainer.

Go TOT!


This is great for her building her toughness and feeling confident in her own skin. It’s also good for her muscle-wise as she grows into a young woman.

BUT…what will grow her resilience of character and strength when things might get hard?
Well, one word.

FAILURE

Ok, maybe two
DISAPPOINTMENT.

EEEEEKK…as a Mom, I HATE to see this for her. I want to whisk her up and solve all of her problems, soothing the pain.

But, what will this accomplish? It will make ME feel better as if I’m “fixing” a problem, and OH, it will make her FEEL better in that moment. But, is that right?
I can soothe her with empathy and kindness as she goes through a storm. Kind of like God does for us. He gives us an UMBRELLA, but the rain still falls.

Today, she cried for hours. Why? Because ALL OF THAT HARD WORK she put in for her book that she is writing has been erased. Yep. GONE. ZIP. ZILCH. KAPUT! She didn’t save her work. Lesson learned.

I couldn’t fix it, nor should I fix it. But OH IS IT HARD!! I have been through that countless times with articles, papers, research… you name it. But, I tried to assure her:
The next time you write it out, it will be even better! I promise. It didn’t help in the short run, but I promise she’ll see it in the long run.

In the meantime, she’s on a bike ride right now brainstorming.

I love you, Tot. Don’t give up. Keep building your resilience. I’m here to cushion the landing.

She lit the candle at SBC!

And sang on Sunday

Before church, she tried on her red display…you like!?

Coopy does too!

And…she’s off!

A small group of young ladies this week.

Tatum lit the candle and spoke from John 14:27 about PEACE

 Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid.”

All the lovely choir with Ms. Rene.

Lighting up our lives!!

The Hay house…Doug always makes it look so beautiful. And this year he did not disappoint.

BOOM!
And it is so. God makes our lives LIGHT and hopefully our home can reflect this character.