When a good health day presents itself….even just a small window, I have learned not to take it for granted.
Saturday gave us one of those windows.
Tatum and I headed out for a little girl time at the salon. Pretty toes, time together, and a chance to slow down. We decided to bring books instead of spending the whole appointment on our phones. There is already so much screen time in life, and it felt good to sit beside each other, turn real pages, and just be present.
We of course take the necessary silly selfies afterward. Face masks, dog filters, flowers…all the things. Because being silly together will always be one of my favorite ways to spend time with my girl.
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Then the rest of the day was about being home and spending time with Doug. Nothing elaborate. Nothing that would look especially important from the outside. Just being together.
And honestly, that is what feels important to me now.
We make the most of the days that we can.
Cooper is always part of those days, naturally. He is never far from the action or the attention. Whether he is staring at us with those enormous eyes or positioning himself directly on top of me…literally… he makes sure he is included.
I love my family.
I love the girl time, the pretty toes, the books, the ridiculous filters, the warm moments with Doug, and the dog who believes personal space is completely unnecessary.
Most of all, I love a good day.
We take our time for granted. We assume there will always be another Saturday, another outing, another afternoon together. But life has taught me that the ordinary days are not ordinary at all.
So when the opportunity comes, we go….we do. We be together.
I haven’t written in weeks. Not because I ran out of words. Because hope has been harder to find.
There is an unexplainable silence that takes over a person when the next doctor’s appointment doesn’t feel like an answer but just another date on the calendar. You begin to wonder if you’re crazy, even though what you’re living is undeniably real.
You look around and realize you have everything you could have prayed for. A husband who loves you. A daughter who lights up your world. A church family. Meaningful work. Faithful friends. Little pets that somehow make every day brighter.
And somehow…that makes the grief even heavier.
Not because you’re ungrateful. Quite the opposite.
You have everything you ever wanted, yet your body won’t let you fully enjoy it. You can’t show up the way you long to. You can’t give back the way your heart wants to. That kind of grief is difficult to explain because it isn’t rooted in loss of blessings; it’s rooted in the inability to participate in them.
Sometimes I find myself wondering, Is this it?
We are taught to believe that if something is wrong, there will be a test that finds it, a diagnosis that names it, and a doctor who knows what to do next. But sometimes the people and places we turn to for answers do not have an answer key. A test may reveal one piece of the story without explaining the whole of what you are living. A diagnosis may give something a name without offering a way forward. And sometimes there is no label that fully captures what has changed inside your body.
That uncertainty can be its own kind of suffering. You know what you feel. You know your body is no longer functioning the way it once did. But there is no single result you can point to that explains it all.
Then, almost without warning, you wake up one morning and feel like yourself again. You laugh. You write. You spend time with your daughter. You enjoy talking and laughing with your husband again; you connect with friends. You dance around the kitchen. For a few precious hours, life feels wonderfully ordinary.
Then the next day…it’s all gone again.
That is the part that tears me up.
Not just the physical struggle but not knowing why.
I’ve been thinking a lot about the word hope. We use that word so casually. I hope tomorrow is better. I hope they find an answer. I hope this season ends soon.
But hope isn’t always a feeling.
Sometimes it is. Sometimes it feels alive and so real. Other times it feels completely out of reach.
That’s when hope becomes something different.
I don’t believe we can manufacture hope. If we could, none of us would ever lose it. We’d simply decide to feel hopeful again. But that hasn’t been my experience.
I think that’s why Scripture points us to a hope that comes from outside ourselves. A hope rooted in Christ instead of circumstances. Because there are days when I have nothing inside of me to give. No inspiration. No certainty. No emotional reserve to pull from.
Love reminds me of this.
When you first fall in love, it feels effortless, and it feels so amazing. Everything comes naturally. But every lasting marriage eventually reaches moments when love becomes less about emotion and more about decision. You choose to stay. You choose to forgive. You choose to serve. You choose to love, even when the feeling isn’t present.
Maybe hope works the same way. It isn’t pretending everything will be okay.
On the days when my own hope feels gone, I want to keep looking to the One who never changes. Not because I feel strong enough, but because He is.
Sometimes the best family memories are the simplest ones…the ones that happen right in the middle of the living room and Coopy absolutely convinced that every activity should revolve around him. He supervises, you see as Dad plays a round.
We played Horrible Therapist which was exactly as ridiculous as it sounds.
In each round, one person becomes the designated therapist. The therapist reads the question card, and every other player submits the answer they think would fit best as the therapist’s response. Then the therapist looks at the question and all the possible answers, chooses the funniest or most fitting one, and whoever submitted that card wins the round.
The combinations become funnier and more concerning with every turn.
“What happened at Trader Joe’s?”
“I started vomiting and couldn’t stop.”
Perfectly normal family entertainment.
When we finish, Cooper must have full body contact.
Then on Monday, Tot and I continued our game marathon while watching Monsters, Inc.Just the two of us, laughing at the cards, watching the movie, and enjoying one of those ordinary afternoons that somehow feels extra special.
Coopy, however, was struggling with the lack of attention.
While Tot and I were busy playing, he carried his beloved banana toy over by the television, dramatically tossed it up there, and then stood whining until someone rescued it for him.
A completely manufactured emergency.
His plan worked, of course.
And when he wasn’t creating a crisis, he was sitting directly in front of the television, completely captivated by the movie.
We try to liven things up with Coops getting a bath. Sometimes that brings him down a notch.
Between the games, Dad, Tot, Coopy, and our sweet birdies, the house was full of all the little personalities that make it ours.
Oh, and just to add to our lively house, outdoors, we always have life. This finch has adopted the leaf outside our kitchen. It’s never a dull moment at the HAY home.
The first is May 23…the day I officially adopted her when she was six months old. Of course, she had already been mine from the very beginning. I was in the birthing room. I cut her cord. I held her from day one.
My heart had chosen her long before the paperwork caught up.
But May 23 is still sacred to me. It is the day the world officially recognized what my soul already knew:
She was my daughter.
Then came July 9.
After Doug and I were married, he officially adopted her too.
Seven years ago, a dream came through for him; the chance not merely to love her, care for her, and help raise her, but to become her dad in every legal and lasting sense of the word.
So July 9 became her second Love Day.
This year, Dad celebrated her with the most perfectly Tatum gift possible: a Target gift card.
Her home away from home.
The card said, “You are one of my favorite humans on this big blue and green ball.”
“Wow. Seven years ago a dream came through for me—to adopt you! I’m so glad to be your Dad!”
There are some words that hold far more than the PENCIL (I love that he writes in pencil so he doesn’t make a perm. mistake).
That morning, I had to go to Mayo Clinic. It was one of those harder days…the kind filled with appointments, uncertainty, and the weight of a body that has demanded so much attention. The Mayo bracelet around my wrist was not exactly how I imagined beginning Love Day.
And then there was Rio, bright yellow and full of personality, showing up like a tiny beam of sunshine. That little bird has a way of brightening everything without even trying.
Maybe that is what love does too.
It does not always remove the difficult parts of the day, but it reminds us that the hard is not the whole story.
July 9th is official, but the truth is, Dad chooses her every day.
Happy Love Day, Tot.
You are one of our very favorite humans on this big blue and green ball.
It started with matching shirts, because sometimes motherhood requires coordinated outfits and absolutely ridiculous filters. Tot and I laughed trying on oversized glasses, cat-eye sunglasses, fuzzy ears, and whatever else the camera decided to place on our heads.
These are the moments I love….the completely unserious ones.
Then Tot discovered the newest craze: mystery blind boxes. You buy the package without knowing which little character is hiding inside and simply hope for the best.
Honestly, it feels like a lot of emotional pressure for one tiny box.
But her first surprise was a Hello Kitty HYOJO figure, and she was SOOO excited. Naturally, Hello Kitty needed to ride home safely in her own little car seat, buckled in like the important passenger she clearly was.
And then, because things apparently come in threes, we wandered into MINISO.
Oh, MINISO.
It was overstimulation and overpriced cuteness packed into one very brightly lit store. There were shelves upon shelves of things we absolutely did not need…but SHE suddenly felt strangely compelled to own.
Tot tried on the fluffiest glasses she could find and struck a pose, because of course she did.
Then she chose another mystery blind box.
We opened it.
Another Hello Kitty!
You would have thought we had won the lottery.
Hello Kitty really did come in threes.
And while the little toys were fun, my favorite part was simply being with my girl. Laughing. Being silly. Watching her excitement over something small and sweet.
There is so much joy tucked inside ordinary days when we slow down enough to notice it.
Especially when we are wearing matching Hello Kitty shirts.
Every afternoon, around the same time, he comes home
Most days, by the time Doug walks through that door, I’ve had a battle no one has seen. Maybe it’s been hours in bed with heating pads. Maybe it’s another day of trying to figure out a body that refuses to cooperate. Maybe I’ve spent the afternoon discouraged, wondering if tomorrow will look any different.
And then he listens. I mean really listens.
He’ll heat up my heating pad. He’ll offer to help with dinner when I can’t. He’ll sit while I try to explain another symptom that doesn’t make sense. Sometimes he offers ideas. Sometimes he just offers his presence.
Doug has done so much more for me than times I can count.
Recently, he is working a different job at Honeywell.
He’s brilliant. He’s an engineer’s engineer. The kind of person others seek out when the problem is too complicated or when no one else has the answer. He carries enormous responsibility, and somehow he still finds time to help the people around him.
Screenshot
Everyone at work really trusts him. I’m not sure people always realize how much he carries.
He is steadfast, faithful, patient, and dependable.
When my world feels unpredictable, he becomes one of the few predictable things.
I know there are many people who don’t have that.
So today, I’m choosing gratitude. Not because our circumstances are simple.
But because God gave me a husband who faithfully carries our family.
There are days that don’t look like much on paper, but to me, they are everything.
These are the days that end up meaning the most.
Tot and I went to see the Minion movie, and honestly, I think half the fun was just being together. The dark theater, the ridiculous little yellow guys, the silly faces, the shared laughs.
She still can’t wait to drive.
She got behind that arcade steering wheel like she was already headed somewhere important.
And I get it.
But I also want to freeze her right here.
Her eyes are just intoxicating to me.
I know every mama thinks this about her child, but there is something about Tot’s eyes.
And then there was Rio.
Our fun, vivacious little Rio. That bird has no idea how much personality can fit inside such a tiny body.
Then came the red, white, and blue.
Paint on the cheek. A patriotic popsicle. A little early excitement as we get ready for America’s 250th birthday.
This is what I love most.
SIMPLE
A movie screen full of Minions. A silly arcade game. A popsicle melting in her hand. Rio being Rio. Tot being Tot.
Because I know these years are moving. I know she is getting taller and older and closer to the day when she really will drive away in a real car, with real keys, toward a real life that God is unfolding for her.